I met with representatives and families from UK SMA Newborn Screening Alliance at the Every Moment Matters: Westminster Exhibition.
The exhibition makes a compelling case for newborn screening for spinal muscular atrophy to be introduced now, for all children across the UK.
The Alliance calls for an ambitious and inclusive approach that brings newborn screening to all children in the UK by the end of this year.
Latest reports show that 332 babies have been diagnosed with SMA too late since treatments have been available in the UK.
With increased newborn screening, we can ensure all children have the best start to life with effective and timely medical intervention when needed.
